BSSCII AGM 2018 Minutes

British Society for Skin Care In the Immunocompromised (BSSCII)
7th Annual General Meeting
Tuesday 3rd July 2018

Board Members Present: Charlotte Proby (Chair), Helen Ramsay (Hon Secretary), Conal Perrett (Hon Treasurer), Tanya Basu (Haem-Onc), David Paige (HIV), Alex Chilvers (Marketing)

1. Apologies
Mary Wain, Chris Bunker, Ferina Ismail, Catherine Harwood, Abha Gulati

2. Minutes from 2017 AGM and Interim Board meetings
Minutes from the AGM 2017 and an Interim Board Meeting (by teleconference 7.12.17) were emailed to members prior to the meeting. Agreed as a true record.

3. President’s Report (Charlotte Proby)
Membership – 56 members, slight increase from last year; now administered by British Association of Dermatologists
Executive Officers – President Charlotte Proby; Hon Secretary Helen Ramsay; Hon Treasurer Conal Perrett
Board Members – David Paige (HIV), Catherine Harwood, Mary Wain (RTR), Ferina Ismail (RTR & website), Abha Gulati (Education), Tanya Basu (Haem Oncology), Alan Milligan(Nurse Specialist & website) , Liza Mitchell (Nurse Specialist), Alex Chilvers (Marketing). Associate Board Member – Chris Dudley (Transplant medicine). Patient Representative – Professor Roger Greenhalgh.
Annual Meeting – Our 6th annual meeting and AGM was held on July 4th 2017, Liverpool, with interactive contributions from 14 oral cases and 17 posters. Guest speaker, Consultant Dermatologist Dr Christian Baum from Mayo Clinic , Rochester, USA gave an excellent talk on ‘Continuing challenges in transplant dermatology: perspectives from the Mayo Clinic’.
Main New Activities – Information Governance (Conal Perrett on behalf of Peter Case-Upton). General Data Protection Requirements (GDPR) privacy notices (on website). Educational Day (Abha Gulati) May 18th 2018. On line Discussion Forum: must give us an email address so that we can comply with Data Protection rules. Seems to be useful, but could be more widely used.

4. Treasurer’s Report (Conal Perrett)
Accounts Summary 1st April 2017- 31st March 2018
Current bank provider Co-Operative Bank
Bank balance 01.04.17 £3802.53
Membership subscriptions £860
BAD 2017 Speaker Honorarium £253.52
Website (maintenance, hosting, updates) £2461.19*
Bank balance 31.03.2018 £1924.42
*includes a repayment to Bill Philips
Projected Outgoings 2018-19
Opening balance £1924.42
Subscription income £920 ytd
Website £1224
Update meeting £1280 (net profit)
Bank balance 26.06.18 £1607.23
BSSCII Membership
Numbers Subscription revenue
2014: 60 £920
2015: 55 £900
2016: 49 £920
2017: 50 £860
2018: 56 £920 ytd

5. Election of Officers
Members were invited with more than 14 days notice to be proposed/seconded for election to the Executive Committee. The officers received two proposals:
• Dr Tanya Basu, London, proposed by Professor Proby and seconded by Prof. Catherine Harwood to be elected to Chair of the British Society for Skin Care in Immunosuppressed Individuals. Unanimously elected to Chair of BSSCII.
• Dr Fiona Child, proposed by Dr Tanya Basu and seconded by Prof. Charlotte Proby. Consultant Dermatologist with special interest in cutaneous lymphoma and GVHD. Unanimously elected to the Executive Committee.
Re-elections and retirements
• Charlotte Proby, Conal Perrett and Helen Ramsay all expressed their willingness to be re-elected to the Executive Committee. All duly re-elected.
• Dr Chris Dudley remains as an Associated Board Member to represent Transplant Medicine.
• Dr David Paige has retired from the Executive Committee.
Thanks were extended by Dr Basu on behalf of BSSCII to Prof Proby for all her hard work and dedication to BSCCII in her role as Chair.

6. Information Governance (Alex Chilvers)
The BSSCII IT Governance Subgroup was formed in December 2017 in response to the requirements for BSSCII to comply with EU General Data Protection Regulations
(GDPR) and comprises Alex Chilvers (SIRO), Conal Perret (Caldicott Guardian), Peter Case-Upton (IG Expert) and the BSSCII Chair. BSCCII are grateful to Peter Case-Upton for his ongoing advice, which is provide free of charge.
Main Activities:
• Information Governance Toolkit (Data Security and Protection Toolkit) submitted in time for NHS Digital deadline
• Information Governance policies created by IG Advisor (Peter Case-Upton)
• Review of third party provider(s) data protection: low risk
• All policies and procedures compliant with GDPR. Additional registers created to align with GDPR requirements
• Privacy notice issued and included on website
• Caldicott Guardian appointed (Dr Conal Perrett)
• Senior Information Risk Officer (SIRO) appointed (Alexander Chilvers)
• Registration with the Information Commission renewed

7. BSSCII Website Update
• Gradual expansion with further patient information & clinical guidelines. Expansion is constrained financially.
• There is now a link to the BAD portal on the home page
• Website is compliant with the new general data protection requirements (GDPR) with the recent addition of our privacy policy – link found on the home page (Alex Chilvers)
• Update on the recent Education Day in News Section of website along with photograph of speakers (Abha Gulati)
• Research area to be updated with current and useful publications (Charlotte/Catherine)

8. Education Meeting Feedback (Abha Ghulati)
The first and highly successful BSSCII Educational event was held at BAD House on 18 May 2018. This was organised by Abha Gulati and Suchitra Chinthapalli. It was agreed that we would aim to hold a second event in 2019, date and venue to be decided. Suggested topics include biologics and systemic therapies, difficult inflammatory skin conditions, paediatric patients.

9. SCOPE, EADO, ITSCC and research opportunities
Prof Proby highlighted SCOPE, EADO and ITSCC. She encouraged members to consider attending the SCOPE Annual meetings. The ITSCC discussion forum is useful for guidance with challenging clinical cases. 14th EADO Congress will be in Barcelona 6-9th Nov 2018 and 15th EADO Congress in Paris April 24th-27th 2019. The Paris meeting will coordinate with a half day SCOPE meeting on Wednesday April 24th.

10. AOB
There was no other business

BSSCII AGM Minutes 2016

1. Members Present / Apologies

Present – Charlotte Proby (President); Catherine Harwood (Secretary) , Bill Philips (Treasurer), Helen Ramsay (Secretary Elect), Chris Bunker, Nilesh Morar, David Paige.

Apologies – Ferina Ismail, Mary Wain, Conal Perrett

Professor Proby welcomed Tania Basu to the meeting.

2. Thank you

Professor Proby extended thanks to the BAD and Morag Forbes (University of Dundee) for administrative support, to BSSCII Board and to Bill Phillips & Catherine Harwood who are stepping down as Treasurer & Secretary, respectively.

3. Minutes from 2015 AGM and Interim Board meetings

To be uploaded on website Action: CH

4. President’s Report (CP)

Membership is currently 53, a slight increase from last year. Executive Officers are Charlotte Proby (President); Catherine Harwood (Hon Secretary); WG (Bill) Phillips (Treasurer). Board Members are Chris Bunker, David Paige, Nilesh Morar (HIV), Helen Ramsay, John Lear (RTR), Ferina Ismail (RTR & website), Mary Wain (RTR), Chris Dudley (Transplant medicine), Alan Milligan (Nurse Specialist & website). The 4th Annual Meeting and AGM were held on July 9th 2015, Manchester included 12 oral cases, 21 posters and guest speaker Dr Kimme Hyrich who gave an insight on the Cutaneous Complications of Biologics. The main activities for the Society over the last year have been improvements to the website and increased used of the email discussion forum. We continue to foster collaborative research studies (see below).

5. Treasurer’s Report (WGP)

Balance 1.4.15 £ 2437.37
Membership Fees +£ 860.00
Website Development -£ 504.00
Balance 31.3.2016 £ 2782.53

Membership fee will remain at £20 per annum, collected by British Association of Dermatologists.

There is a need to secure further income going forward to pay for website.
To encourage new members. Consider seeking charitable donations. Action: Conal Perret

6. Election of Officers

Members were invited with more than 14 days’ notice to be proposed/seconded for election to the Executive Committee. The officers received two proposals.

Dr Abha Gulati, Consultant Dermatologist, Homerton Hospital NHS Trust, London. Consultant Dermatologist, previously academic Clinical Fellow with an interest in medical education including GP education. Proposed by Prof. Charlotte Proby and seconded by Prof. C. Harwood.

Dr Tania Basu, Consultant Dermatologist, King’s College Hospital , London Consultant Dermatologist, with an interest in Haemato-Oncology was proposed by Prof. Catherine Harwood and seconded by Prof. C. Proby and.
Drs Gulati and Basu were elected to the Executive Committee.

Treasurer: Dr Bill Phillips standing down as Treasurer. Dr Conal Perrett, Consultant Dermatologist, UCH NHS Trust, Consultant Dermatologist, large population of Lung transplant patients proposed by Prof. Charlotte Proby, seconded by Prof. C. Harwood and duly elected as Honorary Treasurer.

Secretary: Professor Catherine Harwood standing down as Secretary.
Dr Helen Ramsay, Consultant Dermatologist, Sheffield Teaching Hospitals NHS Foundation Trust, Consultant Dermatologist, with an interest in Transplant dermatology proposed by Prof. Catherine Harwood, seconded by Prof. C. Proby and duly elected as Honorary Secretary.

Chair/President: Professor Proby has been Chair/President for 5 years. There have not been any expressions of interest in taking on this role. Prof. Proby will be standing down as Chair following the next AGM July 2017 unless a new Chair/President can be found sooner. A plea was put out to actively consider who might be willing to take on the role in the future. Action: All

7. BSSCII Website Update and Discussion Forum (CP/FI)

Dr Ferina Ismail, Alan Milligan, Mary Wain and Abha Gulati have worked with a Technology MSc student at UCL with interest in health information to overhaul the existing website and made huge progress. Particular thanks were extended to Ferina Ismail for her work on this. The new redesigned website looks cleaner and more aesthetic. The landing page has significantly changed; the purpose of BSSCII is clearer to users; links with other websites including SCOPE and ITSCC are highlighted.

A Members only login area was considered, but will require additional IT support and is too expensive. Instead the members email discussion forum appears to be working well.

Hosting and maintenance £ 504 per year
Update/improvements £456 May 2016
1.5 hours of support per month £648 per year

Now moving to focus on the content particularly populating sections relevant to HIV and other non-transplant immunosuppressed patients. Volunteers were requested to develop information resources including leaflets / links under headings of HIV dermatology, Haem-Oncology and ‘other’ immunosuppressed groups, perhaps with the help of an enthusiastic trainee.
Action: FI / NM / TB / others

On line Discussion Forum
Email forum to facilitate group discussion established and hosted by Professor Proby. Seems to be useful and well received. Helen Ramsay agreed to explore alternative secure arrangement using NHS email.
Action: HMR

8. Potential/Future research opportunities

A multicenter study on chronic lymphocytic leukaemia and melanoma risk (Rachel Fisher and Rubeta Matin) has secured ethics approval and has been expanded to include SCC risk.

Nicotinamide – feasibility of a UK-wide study on nicotinamide in transplant recipients debated

Paul Harden proposed a study examining genetic markers of predicting risk of SCC in patients who have had one SCC – Catherine Harwood will liaise to take forward Action: CH

9. AOB

10. Date of next meeting

6th Annual Meeting and AGM – provisionally 4th July 2017 (tbc)

BSSCII update for BAD AGM 2012-1

Download either a Word document, or a PDF


British Society for Skin Care in Immunosuppressed Individuals (BSSCII)


The British Society for Skin Care in Immunosuppressed Individuals (BSSCII) is just completing its first year as a fully-fledged society and we are very enthusiastic about all that we are trying to achieve. Our mission is to promote improved patient management and medical research that is relevant for skin diseases in immunocompromised individuals including organ transplant recipients, those on long-term immunosuppressive medications, haematological conditions and HIV infection. BSSCII has established Charity status and has a modest annual subscription of £20 collected through the British Association of Dermatologists. We currently have 56 paid up members and are keen to provide them with a supportive society responsive to their needs.


Now that some funds are available we are developing a website to support best practice, facilitate communication between members and to give information about international societies dedicated to skin care in the immunosuppressed. We have representation in SCOPE (Skin Care for Organ transplant Patients in Europe) and in ITSCC (International Skin Cancer Collaborative), and intend to maintain close contact with both. Alison Heppelwhite, our Nurse representative, has highlighted the need to improve consistency in patient pathways and nurse led intervention. She has formulated a Nursing Action Plan to engage with the BDNG and to actively encourage nurse membership and involvement. We have been busy developing materials to help with the day-to-day clinical management of immunosuppressed patients. The immediate challenge is to get the website up and running so that you can all access these materials including patient information leaflets and management protocols for common skin conditions seen post-transplant or in HIV.  We hope to have this in place by the end of this calendar year, so please watch this space and if you have any particular requests do get in touch.


The emphasis to date has been directed mostly towards organ transplant recipients and our initial BSSCII recommendations will include advice on baseline assessment, follow-up and treatment algorithms and on how to develop a specialist clinic or rapid access hotline. Our role for HIV Dermatology is equally important, but perhaps not as yet so well formulated.  We believe that HIV Dermatology is about:

  1. Earlier diagnosis – there is a case for anyone with a dermatological presentation being offered HIV testing.  Almost all dermatology presentations – itch, rash, lump, oral or genital disease, even hair and nail abnormalities – can be a manifestation of HIV.  Join this debate.
  2. Earlier institution of treatment with Anti-Retroviral Drugs as this will be the best approach for most dermatological complications of HIV infection.
  3. The management of the complications and consequences of treatment including: a) Immune reconstitution-associated disease; b) Drug eruptions; c) Consequences of increased longevity including skin cancers, anogenital malignancy, lymphoma.

We plan to increase your exposure to these many aspects of HIV dermatology and to engage other interested HIV clinicians from a broad cross section of relevant specialities. To this end, we will shortly be sending out a brief survey to identify clinicians involved with immunosuppressed individuals, including clinicians with an interest in HIV.  We hope all BAD members will take part in this short monkey survey helping us to network efficiently in all regions of the UK.


We will hold our first specialist BSSCII meeting and AGM at the BAD Annual Meeting on Tuesday July 3rd 9-12 am.  We are delighted to have Dr Fiona Child as our Guest Speaker on Graft versus Host Disease and the meeting has something for everyone including 4 research orientated presentations, a poster ‘round up’, and a clinically focused interactive case discussion with our Expert panel.  We strongly encourage your involvement in our AGM to make this the Society that you want and, importantly, to help us formally elect our Executive Committee. We are actively recruiting new members and encourage anyone interested to contact Jayne McFarlane or myself, Charlotte Proby, at the University of Dundee. Contact details are:


Tel:      01382 425618             Fax: 01382 740359                 Tel: 01382 496418

Other members of the Executive Board are Catherine Harwood, Bill Phillips, Helen Ramsay, John Lear, Chris Bunker and David Paige.  Do make contact with any of us.


Minutes of Meeting 11th Feb 2011

Minutes of BSCCII Board Meeting,

11th February 9.30-11.30am,

BAD House


1. Introductions / members present

Alison Hepplewhite

Bill Phillips

Helen Ramsay

Catherine Harwood

Charlotte Proby



2. Membership etc

Membership to be increased to £20 per year – ? to be collected by BAD

ACTION POINT: CH to ask re possibility of BAD collecting membership fee.


Should we be a registered charity?

ACTION POINT: BP to be to take on treasurer role and research this


3. IT

BP raised the importance of having a web-based platform for facilitating collaboration, e.g.on drawing up PIS, pathways etc. One possibility is   ‘One-note’  – an online editorial system

ACTION POINT: BP to coordinate – will ask BAD if they have an IT lead; to look into costs of platform like One-note.


CP: has approached one of her secretarial colleagues in Dundee to provide  administrative  support – Jayne McFarlane

ACTION POINT: CP –to circulate email list of board members


4. Baseline screening

Discussion on importance of this – agreed that all patients should be screened within 6-12 months of transplantation.

AH agreed appropriate for nurses to do baselines assessment– could liaise with transplant nurses – need to specify timing of such appointments – at least 30 mins per patient.


BSSCII RECOMMENDATION no 1: Need for baseline assessment – at least by nurse if appropriate – possibly in transplant clinics – within a (6-12 months). Stratify for risk at that point.


CP raised issue of whether we should aim for a BSSCII page on skin problems post-transplant in all  pre-transplant booklets

ACTION POINT: HR to update info on BAD pre-transplant info leaflet


BP – highlighted the importance of ensuring everyone who is in the system is seen, i.e. getting rid of variance – needs to be managed carefully– ensure algorithm followed. Discussion on how best to ensure this. Information should be provided when on transplant waiting list. In terms of ensuing patients are seen for baselines assessment and education post-tx ? need for a database nationally – HR suggested that this could possibly be organised through UK transplant registry – linked into regional dermatology centrea.

ACTION POINT: HR to research this as a possibility.


Other early post-transplant skin problems – HR mentioned that she has developed management protocols for acne, pityriasis versiolor, fungal infections etc –

ACTION POINT: HR  to circulate these protocols – aim to customise and adopt as BSCCII guidelines


5. Rapid access and risk specific pathways

CP – point of baseline assessment is to empower pt – education – risk assess at baseline.

CH = this information could possibly reinforced at subsequent transplant clinics rather than bringing all patients back to skin clinic (we may need to provide appropriate patient material for this)

Once skin lesions develop – must be seen in dermatology clinic.


HR: suggested that Hotline answer-phone are a good means of ensuring rapid access– nurse specialists man this in her centre- patients could be provided with a  business card for pt with info on hotline


BSCCII RECOMMENDATION no 2:  that each institution has a designated route for rapid access – e.g. phone hotline –etc



6. Baseline nurse assessment and discussions around a BSCCII nursing subgroup

BSCCII should develop algorithms for assessment and follow-up – tick list for assessment at baselines (by nurses).

ACTION POINTS: Alison to coordinate check list for nursing assessment and to mailshot the BDNG to ask if other nurses have information etc


HR- to ask one of her 3 nurses to join BSCCII

CH – to ask Liza Mitchell from BLT to join

CB/DP – HIV nurses may with to be involved


AH: Idea of BSCCII nursing group

ACTION POINT: AH to coordinate.



7. Post-baseline management algorithm

Ideally need to devise a BSCCII risk algorithm for follow-up

ACTION POINT: CH to circulate BLT algorithm for modification into BSCCII algorithm

CP: probably best to keep it simple and divide into low, moderate and high risk


7. Paediatric transplant skin clinic

We have not yet thought about paediatric transplant needs within BSCCII

ACTION POINT: HR to ask Celia MOSS; CP to ask Debra Popplewell; CH to ask DP


8. SpR representative

Discussion on whether we need a rep

ACTION : CP to encourage – but we need to check on process. CP to check with referees in Cambridge.


9. Teleconferencing

General agreement that best times for everyone were Tues/Thurs 8AM

ACTION POINT: CP to set up facility in Dundee and Doodle

HR to Check on Skype option


10. Meetings

At BAD – 5th-7th July – members to check diaries over next few weeks and decide upon a suitable date to met during the BAD.


11. HIV

information sent through by Chris Bunker was circulated.

Need to meet with CB and DP on 17th March after RSM to start drawing up similar guidelines protocols etc for HIV, where appropriate


12. Date of next meeting

17th March at RSM

Probably a teleconference after this to consolidate progress

Small Charity Constitution


Suitable for small charities with an annual income under £5,000 that don’t own a building or employ people and do not intend to register with the Charity Commission.

1                  NAME

The charity’s name is British Society for Skin Care in Immunosuppressed Individuals


2         The purposes of the Charity are:

To promote best possible skin care in immunosuppressed persons including the prevention and treatment of skin cancers.

To promote education, good clinical practice and research relevant to skin problems, especially skin cancers, in immunosuppressed persons.


3         Trustees

                The charity shall be managed by a committee of trustees who are appointed at the Annual

                General Meeting (AGM) of the charity.




In order to carry out the charitable purposes, the trustees have the power to:


1.            raise funds, receive grants and donations


2.            apply funds to carry out the work of the charity


3.            co-operate with and support other charities with similar purposes


4.            do anything which is lawful and necessary to achieve the purposes


5         MEMBERSHIP

                The charity shall have a membership.  People who support the work of the charity and are

            aged 18 or over, can apply to the trustees to become a member.  Once accepted by the

trustees, membership lasts for 3 years and may be renewed.  The trustees will keep an up-

to-date membership list.


The trustees may remove a person’s membership if they believe it is in the best interests of the charity.  The member has the right to be heard by the trustees before the decision is made and can be accompanied by a friend.




1.            The AGM must be held every year, with 14 days notice given to all members telling them what is on the agenda.  Minutes must be kept of the AGM.


2.            There must be at least 4 members present at the AGM.


3.            Every member has one vote.


4.            The trustees shall present the annual report and accounts


5.            Any member may stand for election as a trustee.

Members shall elect 3 trustees to serve for the next year.  They will retire at the next AGM but may stand for re-election.




  1. Trustees must hold at least 3 meetings each year.  At their first meeting after the

AGM they will elect a chair, treasurer and secretary.  Trustees may act by majority



  1. At least 3 trustees must be present at the meeting to be able to take decisions.

Minutes shall be kept for every meeting.


3.            If trustees have a conflict of interest they must declare it and leave the meeting while this matter is being discussed or decided.


4.            During the year, the trustees may appoint up to 2 additional trustees.  They will stand down at the next AGM.


5.            The trustees may take reasonable additional rules to help run the charity.  These rules must not conflict with this constitution of the law.




  1. Money and property must only be used for the charity’s purposes.


  1. Trustees must keep accounts.  The most recent annual accounts can be seen by

Anybody on request.


3.            Trustees cannot receive any money or property from the charity, except to refund reasonable out of pocket expenses.


4.            Money  must be held in the charity’s bank account.  All cheques must be signed by 2 trustees.




If the Trustees consider it is necessary to change the constitution, or wind up the charity, they must call a General Meeting so that the membership can make the decision.  Trustees must also call a General Meeting if they receive a written request from the majority of members.  All members must be given 14 days notice and told the reason for the meeting.

All decisions require a two thirds majority.  Minutes must be kept.


1.            Winding up – any money or property remaining after payment of debts must be given to a charity with similar purposes to this one.


2.            Changes to the Constitution – can be made at AGMs or General Meetings.  No change can be made that would make the organisation no longer a charity.


3.            General Meeting – called on written request from a majority of members.


4.            Trustees may also call a General Meeting to consult the membership.






This constitution was adopted on  ______________________ 2011 by the people whose signatures appear below.  They are the first members of the charity and will be the trustees until the AGM, which must be held within one year of this date.



Signed                                                                        Print name and address



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Update for BAD AGM 2011

British Society for Skin Care in Immunosuppressed Individuals (BSSCII)

Update May 2011


The British Society for Skin Care in Immunosuppressed Individuals (BSSCII) is a new society that was approved for affiliation with the British Association of Dermatologists in July 2010.


The BSSCII “mission” is to promote improved patient management and medical and scientific research that is relevant for skin diseases in immunocompromised individuals including organ transplant recipients, those on long-term immunosuppressive medications, haematological conditions and HIV infection.


The BSSCII Committee currently comprises:

President              Dr Charlotte Proby (Dundee)

President Elect    Dr John Lear (Manchester)

Secretary              Dr Catherine Harwood (London)

Treasurer                        Dr William Phillips (Bath)

Board Member    Dr Helen Ramsay (Sheffield)

Board Member    Professor Chris Bunker (London)

This is a founder committee to oversee the establishment of BSSCII and all Executive members of the current Committee must be formally elected or re-elected by the Society before March 2013.


We have held an inaugural meeting of the Board on 11th February 2011 and our objectives for 2011-2012 are:

  • To publicise the Society, its aims and objectives
  • To recruit a membership of 50-100 and to identify and attract dermatologists with a clinical interest in HIV-related dermatology.
  • To gather data on the current skin care practices provided to immunosuppressed patients
  • To promote sharing of best practice with other dermatologists and relevant health care professionals including specialist nurses
  • To plan an educational meeting on Skin Care in Immunocompromised Individuals for 2012


We have established Charity status for BSSCII and are putting other fiscal arrangements in place.  We plan a brief survey (using Survey Monkey) to identify clinicians involved with care of immunosuppressed individuals including clinicians with an interest in HIV.  Please all take part in this survey thereby helping us to network efficiently around all regions of the UK.


We are actively recruiting members and ask all interested parties to contact Jayne McFarlane at the University of Dundee.  Membership is very modest and will be collected by direct debit (preferably).  Contact details are:


Tel:            01382 425618

Fax:           01382 740359